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Dearest Family,
As many of you know Candace's son Foster has been diagnosed with genetic idiopathic( meaning they don't know why or no source) generalized (meaning the seizure affect the whole brain) epilepsy. He also has been diagnosed with a processing disorder and has speech therapy twice a week.
They have had many tests and have attempted several medications which have had mixed results. On August the ninth he had a "clinic tonic seizure ( formerly known as a grand mal seizure) Medication was adjusted and things went well for about a week and then things started to head down hill. He currently is having seizures daily that the medication seems to have no effect of controlling. Blood work was done on the 17th to see if things were out of balance or some sort of infection that might be causing this downturn.
They are faced with several different options, one would be to increase his medications with yet another drug that no doubt would add to the side effects. Another would be VNS Vagus Nerve Simulator, which is like a pace maker for the brain. There would be a generator placed in his chest and a wire that leads up and connect to the vagus nerve. He would still be required to take medication and the device would need to be replaced. It is designed to send a electrical signal to the base of the brain that will shorten the seizures or stop it completely. Its a surgery so there are concerns and risks there. Another option is a service dog which can sense when a seizure is coming on and to alert and protect him. These are expensive and most likely not covered by insurance.
As many of you know Candace's son Foster has been diagnosed with genetic idiopathic( meaning they don't know why or no source) generalized (meaning the seizure affect the whole brain) epilepsy. He also has been diagnosed with a processing disorder and has speech therapy twice a week.
They have had many tests and have attempted several medications which have had mixed results. On August the ninth he had a "clinic tonic seizure ( formerly known as a grand mal seizure) Medication was adjusted and things went well for about a week and then things started to head down hill. He currently is having seizures daily that the medication seems to have no effect of controlling. Blood work was done on the 17th to see if things were out of balance or some sort of infection that might be causing this downturn.
They are faced with several different options, one would be to increase his medications with yet another drug that no doubt would add to the side effects. Another would be VNS Vagus Nerve Simulator, which is like a pace maker for the brain. There would be a generator placed in his chest and a wire that leads up and connect to the vagus nerve. He would still be required to take medication and the device would need to be replaced. It is designed to send a electrical signal to the base of the brain that will shorten the seizures or stop it completely. Its a surgery so there are concerns and risks there. Another option is a service dog which can sense when a seizure is coming on and to alert and protect him. These are expensive and most likely not covered by insurance.
We would like to suggest and invite each of you to join us in a family fast for the blessing of understanding, guidance and direction as to what course of action they should take. I suggest Sunday the 29th of this month. We know that as we unite our prayers in Foster's and Candace and Darwin's trust and love in our Heavenly Father that they will be blessed to know what they need to do to bless their family. We love each of you so very much and it saddens our heart to learn of the struggles each of you face, this one just is much more apparent and effect the entire family.
I hope that you will share this invitation to unite our prayers in their behalf with cousins friend and other loved ones.
We love you all and are grateful for all you do and the support and love you share.
Love
Steve and Ann Murphy Macbeth
I hope that you will share this invitation to unite our prayers in their behalf with cousins friend and other loved ones.
We love you all and are grateful for all you do and the support and love you share.
Love
Steve and Ann Murphy Macbeth
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